Angelman Syndrome is usually not recognized at birth or in infancy since the developmental problems are nonspecific during this time. Angelman Syndrome has confounded and confused the medical community and parents of Angelman individuals for hundreds of years. Initially presumed to be rare, it’s now believed thousands of Angelman Syndrome cases have gone undiagnosed or misdiagnosed as cerebral palsy, autism or other childhood disorders.
I put this web site up for my grandson, he's my "Angel", my family and friends.
To encourage parents, grandparents, legal guardians and care givers to advocate for their child, or the child they care for. To help enlighten the public about Angelman Syndrome.
Possible links to finding and getting the necessary help. The challenges we go through, trying to get help for a child born with a genetic disability or any other disability.
To enlighten school districts about Angelman Syndrome. These are very intelligent people who need extra help. Whether it be transportation needs, communication devices or on hands help. They are not to be hidden from society “shipped out of town” for their life skills, or educational needs.
My grandma and I living and loving life on life's terms.
I wake every day at the crack of dawn, literally. I looking forward to what there is to do and discover. I see the world through amazing eyes, with wonderment. Greeting everyone I meet with a "hi" and a big smile, then I use my sign and want to know your name. My ice breaker is boo. I laugh a lot, it is appropriate though.
I love traveling, camping, shopping, going to Pow wow's, dancing and school. I like to play ball with everyone who comes to visit.
Life is an adventure and I love every minute of it!
These two ladies are so special in our lives, My Great Grandmother Marilyn & Great Auntie Jo Ann
They have given us mental, emotional and physical support; we appreciate them so very much and are grateful they are part of our life.
I put this web site up for my grandson, he's my "Angel", my family and friends.
To encourage parents, grandparents, legal guardians and care givers to advocate for their child, or the child they care for. To help enlighten the public about Angelman Syndrome.
Possible links to finding and getting the necessary help. The challenges we go through, trying to get help for a child born with a genetic disability or any other disability.
To enlighten school districts about Angelman Syndrome. These are very intelligent people who need extra help. Whether it be transportation needs, communication devices or on hands help. They are not to be hidden from society “shipped out of town” for their life skills, or educational needs.
My grandma and I living and loving life on life's terms.
I wake every day at the crack of dawn, literally. I looking forward to what there is to do and discover. I see the world through amazing eyes, with wonderment. Greeting everyone I meet with a "hi" and a big smile, then I use my sign and want to know your name. My ice breaker is boo. I laugh a lot, it is appropriate though.
I love traveling, camping, shopping, going to Pow wow's, dancing and school. I like to play ball with everyone who comes to visit.
Life is an adventure and I love every minute of it!
These two ladies are so special in our lives, My Great Grandmother Marilyn & Great Auntie Jo Ann
They have given us mental, emotional and physical support; we appreciate them so very much and are grateful they are part of our life.